The 25cohort collaboration needs your help!


Understanding how and why lipedema happens has long been held back by limited research, too few participants in studies, and clinicians and scientists unaware of each other’s efforts. We are changing that.

In partnership with Dr. Karen Herbst and University of Arizona TREAT program, the Lipedema Foundation (LF) is proud to announce the 25cohort collaboration. Working with eight institutions and nine laboratories, our goal is to comprehensively study and understand what is going on in lipedema study participants and tissue.

And for this to work, we need your help in engaging and recruiting two groups of study participants:

  • Women with lipedema

  • Women without lipedema to serve as research controls and compare against lipedema. These women can be healthy, lean, or obese.

With you, your family, and friends, our goal is to recruit Stage 1/2, Stage 2/3, and controls (women without lipedema) for this critical effort. For more information, please view the step-by-step process and study flyers below.

How will it work?

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Step 1

Potential participants reach out to the University of Arizona TREAT Program to be screened for eligibility by emailing treatprogram@deptofmed.arizona.edu .

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Step 2

Qualified participants will travel to Tucson, AZ to meet with Dr. Herbst, and if eligible, for diagnosis, testing, and collection research samples.

 

Step 3

Study participants who match the inclusion criteria will then travel to both The University of Texas Health Science Center at Houston in Houston, TX and Vanderbilt University Medical Center in Nashville, TN to undergo imaging research.

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Step 4

While participants are undergoing imaging, the samples collected from their visit at the University of Arizona TREAT Program will be sent to laboratories across the US for analysis. Scroll to the bottom to see a list of all collaborating facilities.


25cohort Study Flyers

If you or someone you know is interested in joining the effort, they will need to join the three following clinical studies:

  1. UA TREAT INSIGHT research study for women with lipedema and controls

  2. UTHouston Lymphatic Function research study for women with lipedema and controls

  3. Vanderbilt INFORM research study


25cohort Collaborators