Educational Resources
Download any resources and distribute as you wish. You may print it on your home printer or via professional printing shops. Click on the images below to download the files for your own use.
Resources available to order
The Lipedema Foundation offers free printed educational resources to support people affected by Lipedema, as well as the clinicians who care for them. These materials (Clinician’s Guide, Brochure, and Treatment Diagram) are designed to increase awareness, improve understanding, and support informed conversations about diagnosis, treatment, and care.
These resources are available for order at no cost and can be shipped directly to you upon request.
Clinician’s Guide
The Clinician’s Guide to Lipedema is a comprehensive educational resource developed to support healthcare providers in recognizing, diagnosing, and managing Lipedema. This desk reference guide includes current clinical insights, diagnostic considerations, and treatment approaches to help improve patient care and clinical understanding of this underdiagnosed condition.
While designed specifically for clinicians, patients and caregivers may also request or print this guide to share with their healthcare providers as part of informed, collaborative care discussions.
For more clinician resources visit lipedema.org/clinicians
Treatment Diagram
The Lipedema Treatment Diagram is a visual educational tool that illustrates the multi-faceted approach to Lipedema care. It highlights the interconnected components of treatment, including medical management, lifestyle considerations, and supportive therapies, in an easy-to-understand format.
This resource is helpful for patients navigating treatment options and for clinicians seeking a clear, visual reference to support conversations with individuals affected by Lipedema. Clinicians report that having this resource as a printed handout is helpful for educational conversations with patients at the beginning of their treatment journeys and throughout the care process.
LF has catalogued more information about each of these treatments in our Treatment Tables which can be found at lipedema.org/treatments
Lipedema Brochure
The Lipedema Foundation Brochure features key questions and shows what to look for in diagnosing Lipedema. We have disseminated hundreds of thousands of brochures internationally and hear from patients and clinicians alike that this is a critical tool for awareness and education. We encourage you to order the brochures to facilitate conversations and promote understanding of Lipedema in your community.
English (American)
German
Spanish (European)
high resolution versions available
If you are printing from a professional print shop, you may prefer to use a higher resolution brochure or a version that include bleed marks. If so, please use the brochures below.
High Resolution with bleed marks
High Resolution
Resources Available for Download
All educational resources below are available for download and may be printed at home or by a professional printer. If you are a patient, clinician, you may find these resources helpful in increasing awareness, educating others, and advocacy.
Four Lipedema Controversies
In Lipedema, there are meaningful differences in clinical interpretation, particularly around: lymphatics, obesity, prevalence, and pain.
We developed a concise, research-based summary that outlines what the current evidence says and where important questions remain.
Download the 4 Lipedema Controversies
Patient Self-Advocacy Guide
Our Patient Self-Advocacy Guide is intended to help Lipedema patients in the United States no matter where they are in their journey. The Lipedema Foundation believes that every person deserves a timely diagnosis, disease-specific care, and other forms of support. Though there is currently no universal cure for Lipedema, we hope this guide will help you navigate your healthcare journey.
Download the Patient Self-Advocacy Guide
Patient’s Bill of Rights
Every person with Lipedema deserves to have timely diagnosis and treatment options. This Lipedema Patient’s “Bill of Rights” is designed to help patients navigate the process to get a proper diagnosis and find effective care, and overcome obstacles due to systemic and cultural bias.
Download the overview and read an expanded version
LF Registry: First Look Report
Data from our First Look Report sheds light on common experiences of those living with Lipedema. The Report is analysis done on 521 participants with Lipedema, which represents 14,556 years of lived experience with the condition. Findings include: Long delays between onset and treatment; No standard path to diagnosis; Consistent pain; Leg heaviness, fatigue, and easy bruising top symptoms; Runs in families
Download the Report to learn more
Sexual Health & Intimacy
Living with Lipedema can affect many aspects of daily life, including intimacy and relationships. Women report struggles with body image, pain during sex, and a lack of understanding from partners and healthcare providers.
Our new handout, Living with Lipedema: How It Affects Sexual Health and Intimacy, shares these experiences and provides guidance on how to talk with providers, seek support, and include partners in care.
Read more about this topic and download the Sexual Health & Intimacy flyer
Are You Seeing Patients Like This?
This flyer was developed with the intention of educating clincians who may have only some or no knowledge of Lipedema. Please share with clinicians to help further education and awareness.