Lipedema Research and Researchers

The Lipedema Foundation's Research Program is focused on building the research field needed to define, diagnose, and develop treatments for lipedema.

In conjunction with the Milken Institute, the Lipedema Foundation has published the disease landscape report, Lipedema Giving Smarter Guide. Read the report!

Lipedema Research Challenges

Absence of diagnostic tools

Diagnosis of lipedema involves a clinical assessment and discussion of the individual’s medical history, a process that is difficult to scale within the current healthcare system. The absence of diagnostic tools to streamline or confirm a clinical diagnosis is a key unmet need, which if addressed by research, has the potential to dramatically change the trajectory of the disease. More on diagnosis.

Limited disease biology

Little is known about how and why lipedema develops in a patient.

Although the lack of disease biology is staggering, research efforts can leverage the desire of patients to participate in studies to improve their and the entire field’s understanding of lipedema. The convergence of multiple scientific topics around lipedema indicates that addressing these gaps in research will also improve the understanding of hormone, pain and edema, mental health, and metabolic biology. For more on disease biology...

Building the lipedema research network

Established in 2015, LF has committed over $2.9 million research dollars towards defining, diagnosing and developing treatments for lipedema. Our research program currently supports basic, diagnostic, genetic, and clinical researchers, as well as the University of Arizona's TREAT Program and Tissue Biorepository. For more on our grantees.

And we are just getting started! Informed by the unmet needs and key research efforts identified by our 2016 Lipedema Scientific Retreat, we are now reviewing 2017 grant applications to keep advancing lipedema research.

For more on our ongoing projects.

LF Grant Program and LOI Submission.