Our Research Impact

Research funded by Lipedema Foundation is already being published and presented. Although sample sizes remain small for now, the results of these early studies help to inform future research priorities.

Progress Toward Diagnostic tests

Tissue Sodium Content is Elevated in the Skin and Subcutaneous Adipose Tissue in Women with Lipedema.

To be announced at the FDRS Conference in April 2018.

Enrolling studies & ClinicaL Trials

Research during FDRS 2018 conference

Vanderbilt Survey and Na-MRI exam

INSIGHT at The University of Arizona

Quadrivas I

BIOBANK

INSIGHT at The University of Arizona

Publications

Lipedema: Friend and Foe

Tissue Sodium Content is Elevated in the Skin and Subcutaneous Adipose Tissue in Women with Lipedema.

Differentiating lipedema and Dercum's disease

Pilot study: whole body manual subcutaneous adipose tissue (SAT) therapy improved pain and SAT structure in women with lipedema.

Low dose d-amphetamine induced regression of liver fat deposits in Dercum disease

Conferences and Presentations

Karen Herbst

Fat Disorders Research Society #FDRS2018 - April 2018

Obesity Medicine Association Meeting Lipedema Diagnosis and Treatment – September 2017

Asia Pacific Lymphology Conference: New Networks New Solutions, May 2016

  • Lipedema, Assessment, Diagnosis and Treatment – 3 hour workshop
  • SAT Disorders Similarities and Differences
  • Lipedema Is Not Just Fat Legs
  • Lymphatic Dysfunction in Obesity and Diabetes
  • All About Lipedema and Treatment

Fat Disorders Research Society #FDRS2017 – April 2017

  • Keynote Address: Dercum’s Disease vs. Lipedema
  • Quadrivas Therapy
  • Dercum's Disease Research

Vanderbilt team

Lymphatic imaging in patients with lipedema and lymphedema: potential applications to CNS lymphatics, Johns Hopkins University - February 2018 (Manus Donahue)

Lymphatic vessel visualization using a novel, non-invasive MR lymphangiography technique Association of Academic Physiatrists -February 2018 (Paula Donahue)

Lymphedema and lipedema in women: insights into lymphatic disease, Vanderbilt University Institute of Imaging Science - January 2018 (Rachelle Crescenzi)

Vanderbilt Univ. Institute of Imaging Science Annual retreat – June 2017

  • A novel application of quantitative sodium MRI for distinguishing lipedema from obesity (Rachelle Crescenzi)

Society for Vascular Medicine 28th Annual Scientific Sessions – June 2017

  • Lymphedema and Lipedema in Women: Emerging Mechanistic Insights (Rachelle Crescenzi)

X-Nuclei Imaging Study Group of International Society for Magnetic Resonance in Medicine (ISMRM) 25th annual meeting - April 2017

  • A novel application of quantitative sodium MRI for distinguishing lipedema from obesity (Rachelle Crescenzi)

Fat Disorders Research Society - April 2017

  • Magnetic resonance imaging reveals high tissue sodium and fat in women with lipedema

Lipedema Scientific Retreat - October 2016

  • Functional Imaging of Sodium and Lymphatics in Patients with Lipedema (Rachelle Crescenzi)

Kristiana Gordon

Klose Lymphedema Conference Denver – May 2017

  • Lipedema: a genetic condition?

Living with Lymphoedema Conference London, Royal Marsden Hospital – September 2017

  • Exploring different oedemas

Pia Ostergaard & Peter Mortimer

Lipoedema UK Conference – October 2017

Carrie Shawber

Lymphatics Gordon Research Conference – March 2018

  • Notch4mutant Mice Develop a Lipedema Like Syndrome Associated with Dermal Lymphatic Defects

Erik Lontok

Lymphatics Gordon Research Conference Poster – March 2018

  • The Lipedema Sandbox

Echoe Bouta

Lymphatic Forum Chicago – June 2016

  • Comparison of lymphatic function techniques

Javier Jaldin-Fincati

World Congress of Lymphology – September 2017

  • Communication between adipose and lymphatic microvascular endothelial cells

Other

  • Created Excel file of 250 Lipedema papers
  • Created Excel file of Lipedema Research Books
  • Paper translated to English "Pain in Lipedema" by Prof. Dr. Schmeller in 2008 paper translated into English, Schmeller W, Meier-Vollrath I. Pain in lipedema - an approach. LymphForsch 2008;12:7-11.