Patient Stories

Patient stories inspire our mission and drive our commitment to define, diagnose, and develop treatments for Lipedema.

Crystal W.

What keeps Crystal going is her deep commitment to advocacy and joy. Through her blog and her social media presence, she shares her story with unflinching honesty.

Crystal

Crystal continues to be a voice in the Lipedema community. She believes every woman deserves to feel seen, understood, and supported—no matter their background.

Kasi

After publicly sharing her Lipedema story, Kasi made it her mission to normalize conversations about personal health and advocate for other patients.

Juli

Juli was always involved in sports - despite having large and painful legs. Once she was diagnosed, she found treatment options that enabled her to resume her active lifestyle.

Carina

Carina speaks out about the importance of early diagnosis, compassionate care, and widespread education. As a nurse herself, she uses her voice to educate others.

Sharmela

Sharmela continues to fight—not just for herself but for others. She’s passionate about educating healthcare providers, trainers, and the public.

Jeanne

By staying active, mindful eating, and doing things that make her feel confident, Jeanne has come to live and enjoy life with Lipedema on her terms.

Amanda

After a lifetime of not understanding why her body was different from others, Amanda’s research led her to a lipo-lymphedema diagnosis.

Cynthia

Instead of letting a late diagnosis become a limitation, Cynthia saw it as a turning point, determined to do research and learn what she could.

Becky

Becky emphasizes the importance of finding knowledgeable doctors who understand Lipedema and advises others to seek medical professionals familiar with the condition.

Angelique

Anqelique faced discrimination her entire life as she tried to get medical answers. She said she felt like she was alone on her journey, but now she has found community.

Hiba

Hiba shares her compelling journey of self-advocacy and healing, overcoming years of misunderstanding by the medical community.