For Patients
Every person with Lipedema deserves timely diagnosis, disease-specific care, and access to meaningful support. While there is currently no cure, there are treatments and resources to help you make informed decisions and navigate your healthcare journey.
Check out the following resources to learn more about managing lipedema and advocating for your own care journey:
What Is Lipedema?
Learn the basics of Lipedema — what it is, how it presents, and how it differs from other conditions like obesity and lymphedema.
Self-Advocacy Guide
A step-by-step guide to help you communicate with your healthcare providers and advocate for yourself.
Patient Bill of Rights
Know your rights as a Lipedema patient, including the right to accurate diagnosis, informed treatment options, and compassionate care.
Find a Provider
Search our directories of diagnosing clinicians and therapists who are knowledgeable about Lipedema care.
Clinician's Guide
Share this evidence-based clinical guide with your healthcare providers to help them better understand Lipedema diagnosis.
Order Resources
Download or order free brochures and educational materials which you can share with your clinicians or your community.
Lipedema Treatments
Explore the range of treatment options, from conservative therapies to surgical interventions, that can help manage Lipedema symptoms.
Photo Stories
View our SmugMug gallery with more than 500 photos of Lipedema.
Patient Stories
Read firsthand accounts from people living with Lipedema — their journeys, challenges, and triumphs.
LF Newsletter
Subscribe to the Foundation newsletter to stay up to date on the latest Lipedema research, Foundation news, events, and patient resources.
Join the Registry
Contribute to research by joining the LF Patient Registry. Your participation helps our understanding!
Clinical Study Finder
Find active clinical research studies seeking Lipedema patients through our LegWork study finder tool.
Research Library
Search published Lipedema research by keyword, topic, and more in our online Legato Research Library.
Videos & Learning
Learn from leading Lipedema experts through our collection of educational videos and presentations.
First Look Report
Explore insights from more than 500 individuals living with Lipedema, including common symptoms, diagnostic delays, treatment experiences, and family history patterns.
Lipedema & Intimacy
Learn how Lipedema can affect intimacy, relationships, and sexual health, with practical guidance for communicating with partners and healthcare providers.
About the Lipedema Foundation
The Lipedema Foundation aims to define, diagnose, and develop treatments for Lipedema and is the largest funder of Lipedema research. Our work focuses on understanding the biology of Lipedema and improving diagnosis. We have provided $13.6 million in research funding, supported projects globally, and established the LF patient registry with over 5,550 participants. We also work to increase awareness through educational materials, conferences, social media outreach, and healthcare provider education.