We’re proud to share a major milestone for the Lipedema Foundation: the official launch of the LF Lipedema Biobank at this year’s Fat Disorders Resource Society (FDRS) Conference. As part of the conference, we hosted a Live Research event that brought together researchers, clinicians, and individuals living with Lipedema to support research in real time.

Over the course of the event, we collected biological samples from 74 participants—marking the very first contributions to the biobank. These samples, along with accompanying clinical data, will serve as an invaluable resource for future studies focused on understanding the potential causes, progression, and treatments for Lipedema.

In 2022, Lipedema Foundation sponsored research by Prof. Dr. Tim Hucho and Rebecca Dinnendahl, PhDc in Germany. The goal of this recently published research study was to make such reports of pain in part objectifiable by measuring the sensitivity to a variety of stimuli such as warmth, cold, touch, painful heat, painful cold, pressure pain, and vibration. Their findings suggest a heightened sensitivity to pressure pain, a reduction in sensitivity to vibration, and a completely normal response for all other tested sensations.

The Lipedema Foundation had the pleasure of interviewing Dr. Tim Hucho, the Principal Investigator, and neuroscientist Rebecca Dinnendahl, first author on the publication and lead scientist of the study, to discuss what pain is and why this research matters for individuals with Lipedema, clinicians, and the research community.  Read more to hear their perspective on pain in general, on the research outcomes, their thoughts on working with the Lipedema population, and future implications for enhancing the early diagnosis of Lipedema – specifically an explanation of the potential of using sensory testing as an accessible diagnostic tool going forward. 

In this insightful interview, pelvic health experts Tiffany Baker, PhD(eligible), PT, DPT, CFMT, C.Ac., CPT (NASM-PES), and Kelly Schroeder, PT, DPT, CLT, MBA, discuss the intricacies of the pelvic floor, the importance of pelvic health for women, particularly those with Lipedema, and what to expect from pelvic floor therapy. Their combined expertise offers valuable information for anyone seeking to understand and improve their pelvic health. 

We are excited to share that the Fat Disorders Resource Society (FDRS), a volunteer patient-led organization, is hosting its annual conference (FDRS 2024 Annual Conference) in St. Louis on April 19-21. The Lipedema Foundation will be attending the event, which gathers patients, clinicians, therapists, and researchers for education, networking, and listening.  There are many wonderful aspects of FDRS, and LF has compiled 5 compelling ones we hope will encourage you to attend in 2024!