LF is at the Lipedema World Congress in Rome!
Come find us at LWC!
Common Case Report Form (CCRF)
LF has been working on creating a Common Case Report Form (CCRF) with the goals of having a CRF to use in the LF Biobank, having more standardized data collection amongst LF awardees in 2026 and beyond, and to publish online as a resource to the field of Lipedema. Get a sneak peak and share feedback!
Lipedema Foundation Biobank
The Lipedema Foundation Biobank is a new initiative created to support research into the causes, diagnosis, and treatment of Lipedema. By collecting and securely storing biospecimens and health information from individuals with Lipedema and related conditions, the Biobank will become a resource for scientists working to better understand this complex disease.
To request samples from the biobank, reach out to biobank@lipedema.org
Have great ideas about how we should use biobank samples?
About the Foundation
The Lipedema Foundation is a private, non-fundraising organization established in 2015 to define, diagnose and develop treatments for Lipedema. It has awarded more than $13.6 million to date, funding 64 research studies with partners at 55 institutions in 10 countries. In 2025, the Lipedema Foundation launched the Lipedema Foundation Biobank to support research into the causes, diagnosis, and treatment of Lipedema, and continues to maintain the Lipedema Foundation Registry. Meet the team!
Research Resources
Review Lipedema Foundation’s Lipedema Research Roadmap, which recommends action to grow and strengthen Lipedema Research.
Lipedema Foundation has funded $13.6M in research, across 64 studies with research partners at 55 institutions in 10 countries. Learn about our recent projects.
Looking for Lipedema research papers? Our on-line Legato Library makes it easy to search for Lipedema research by keyword, topics, and more.
The First Look Report features the findings of the Registry survey from data provided by 521 participants with Lipedema.
Clinician & Patient Resources
Access the Clinician’s Guide, information about diagnosis and ICD-codes, treatment information, and many more resources on our For Clinicians page.
Request free print copies here.
Access our Lipedema Care & Treatments Options graphic and details regarding treating Lipedema here.
The LF Provider Directories are designed to help people with Lipedema, their healthcare providers, and others identify professionals who have told us they treat and/or diagnose Lipedema in their clinical practice. Access our Therapist Directory and our Diagnosing Clinician Directory.
Sign up for the Lipedema Foundation Registry! Participation in our Registry helps support scientific research to improve the life of Lipedema patients.
Want to participate in research studies? If you wish to learn about clinical research studies and patient surveys that are seeking Lipedema patients, check out our LegWork Clinical Trial Finder.
Our Patient Self-Advocacy Guide is intended to help Lipedema patients as they navigate their healthcare journey. Though there is currently no cure for Lipedema, we believe that every person deserves a timely diagnosis, disease-specific care, and other forms of support.
Lipedema Education Resources
View Unmasking Lipedema in Obesity: Key Diagnostic Tips & Proven Management Strategies for Better Care, a recorded session from OMA. This is offered for free CME credit to those who are eligible.
Download or order free copies of Lipedema Foundation Brochure, which features key questions that patients may have about Lipedema. Download or order free brochures or Clinician’s Guides here.
Check out our Lipedema Photo Stories and photo gallery with >500 photos of Lipedema.
The ‘What is LIpedema?’ video features descriptions about Lipedema symptoms, diagnosis challenges, and related disorders.